You are probably are wondering why I could go TWO YEARS without posting and I've posted a few times in a week. Well...that's what VACATION is for, right? Actually, over the last three weeks I have been preparing for the new school year and I'm finally done...and still have 4 days left of vacation! Pretty pathetic vacation time when you look at 365 days in a year, but I'll take what I can get. ;)
For those of you who remember where we were 2 years ago, Miracle is still very time consuming with her needs. She will be three in September!! She started playing with toys this winter and her vision and arm control are getting better, so she's actually been learning to entertain herself for periods of time. We also got a wheelchair in December and she is enjoying sitting in that more often than our laps these days. She still prefers the floor, though. And our laps after dinner closer to bedtime. And still takes all her naps in my arms. We are working on this... ;)
She has just recently learned to roll on her own through an intense physical therapy program in Pontiac, MI called Euro-PEDS. I was very impressed with the program when she came home rolling and taking her first steps with a gait trainer! She receives physical, occupational and speech therapy all twice a week and it's 30 minutes from our home. That kills our homeschool day. We are trying to do dual therapy and cut down on how many times I have to leave the house in a week.
Miracle at Euro-PEDS in Pontiac, MI doing intense physical therapy
Yes, undeniable insane. That's me.
She got hearing aids at 18 months, though I had been concerned since she was an infant about her hearing. At least she has them now. She cries when you forget to put them on after naps or wait too long in the morning to put them on. Apparently the first 18 months she had a hard time hearing my voice (heartbreaking for me) and could only hear when her siblings screamed, cried or yelled. THAT is why she always smiled when they cried. We always thought that was funny, but really it was cause it was the only time she could hear them well. Eh, I think she still smiles when they cry... But, by the amazing power of technology, Miracle can hear just as well as I can now (it just sounds like everyone is talking through a tunnel).
Wish we could fix everything that way.
She also uses hand splints to keep her thumb out and in a useful position, ankle-foot orthodics to keep her right foot from getting contractures in her ankle from constant pointing of her toes and high tone, a stander to work lower body muscles and practice head control and she will hopefully be getting a gait trainer soon, too. She took 16 steps in a row on her own with a gait training at Euro-PEDS this month! Never been so excited for the first steps of any of my children... She also takes Zantac and two anti-seizure medications daily. She has been having seizures more regularly since February of this year. We went 1.5 years without them. Very disappointing. And now she is regularly getting boils on her bottom - I assume from being in the same positions all the time. Sigh.
Miracle with her new therapy kitten, Oreo
Needless to say, Miracle takes up a lot of my time and I love her to death. But, I realized this year bouncing between my 5 children, that I truly needed help. More than I wanted to ask for. So I began a search for some kind of respite care and found out that she qualifies for nursing care via her g-tube and I can probably get whatever I request!
So, I found an agency and we've been working all summer getting things in place for help as soon as school starts in the fall. I originally requested 2 hours a day. Then I planned my homeschool and decided I needed 10 hours each day. ;) Right now they will be coming in 4 hours a day and I may request a few more hours on certain days once we get started. We had looked at Preschools in May because I was desperate to get a few hours of school in without interruption. I just do not want her away from me AT ALL. I wanted to cry thinking about all the stress I would have wondering how they were caring for her and what she was doing knowing she couldn't tell me herself. So glad we found another route. I think I would have taken a year off of school illegally before taking her to Preschool.
It has been rough and stressful, but I'm still loving being home and my kids are too. They are doing excellent in their studies and I'm very proud of them. We have enjoyed the school we have crammed in between sports, swim and piano lessons, therapy sessions and life.
Chess Tournament 2012
Sid the Science Kid 2nd Place
Princess Pea 3rd Place and she got the Sportsmanship Trophy!
Sid and his Lego creation at the Children's Museum in Indy
Princess Pea swinging with Miracle at the park
Angelica Pickles lost her first tooth this month
BooBoo being the goofball he usually is
BooBoo with cape held together with a pantyliner, complements of my friend Michelle
(great babysitter, huh?)
Mr. Prince is teaching 3rd grade for the first time this year. I like teaching the same grade he is and comparing my curricula to his. ;) Mine are always better and more advanced. Hehe. He was able to play basketball, soccer and baseball this past year. We decided that we needed out of the house more last year, so we each got involved in a lot. Probably too much, so we are cutting it down for this year. But, it's good for the both of us.
And then there is me. School dominates most of my daily and even nightly schedule, but last year I did dance in the same Christian dance troupe as my girls and did Bible Study Fellowship. BSF was a lot and I couldn't keep up in the spring once all our outside activities had their end of the year bashes. I loved dancing again after over 17 years of being away from it. I got my flexibility back, lost 20lbs and just enjoyed myself. Unfortunately, we can't afford for me to dance again this year. But, it looks like my church is putting together a performance based dance group for Sunday worship services that I'm going to look into. That would probably better suit my schedule anyway. BSF is actually studying Genesis this year too, just like we are in homeschool, but I'm not sure I want to make that commitment again. We shall see. For now, I look forward to the few GNOs I get and chatting on the phone when I have a moment.
Me, Angelica Pickles and Princess Pea at the Restored to Glory dance presentation 2012