Saturday, December 12, 2009

Myra - 2.5 months old

Myra has had such a rough start, poor little girl. What an amazing story we will have to tell her someday, though...

We actually ended up in the ER with Myra last weekend because she had her first seizure since 1 day old. They were weaning her off her seizure medication in hopes that her seizures were just due to her traumatic birth, hoping she didn't actually have a seizure disorder from brain damage. It's still to early to tell, but she will be on medication for at least a few years now, possibly for a lifetime. Unfortuantely, her debut as baby Jesus didn't happen, as we left for the hospital just minutes before she was to be on stage. Thankfully, we had planned a back-up baby for each performance in case one baby was fussy. Oh well.


Myra seems to slowly be getting back to her normal self. It took a number of days. But, she is back to tracking well, cooing some, smiling occasionally, and even grabbed onto my shirt a few times while nursing today.....all great accomplishments! We are working on tummy time, range of motion, and stretching out her neck (because she prefers the right side) with her physical therapist currently. She is still seeing a neurologist, pediatrician, physical therapist and chiropractor regularly. She has surgery for her umbilical hernia scheduled for December 17th. This week her intestines were falling through her hernia and seemed to be bothering her a lot. The surgeon said we could do the surgery any time, and we opted to do it sooner rather than later. Since she has to be under sedation for her MRI also, we are doing the MRI the same day. Unfortunately, it won't be until the end of January when we get those results. Her head has grown some more lately. It was 33cm at birth and is now 33.6cm. Something is better than nothing!! So far she seems to be developing normal, but there is still lots to wait and hope for. So, for now we take one day at a time and celebrate the little things. And each time I kiss my other four kids on their heads, I thank God for their big noggins that hold a perfect healthy brain. You sometimes don't know all the things you truly should be thankful for until it has been taken away...

Here are some photos of Myra now that she is 2.5 months.

Mommy has splurged on dresses now that I'm realizing this may be my last little girl!!!

4 comments:

Anonymous said...

Know that your family is still being prayed for!

G.L.H. said...

Darling dresses! Darling girl!

--(somewhat prejudiced)Grandma

Shanna said...

LOVE the boots!

Saying a prayer here and hoping the surgery went well.

Nori Coleman said...

How wonderful to hear your faith-filled story about your beautiful baby. Tyhanks for sharing. Continue to hold fast to God and his peace.