Working on a Full House: Winter Fun

Monday, January 18, 2010

Winter Fun

Thanks to thrift stores and Grandma,
I had gear for everyone to play in the first snow fall!!

Boo Boo took a face dive early on, but still wanted to be outside!

Sid tried to climb the ladder to no avail....

Snow Angels!

Boo Boo had a GREAT time on the slide!

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Adoption Timeline

March 2014 Viewed Yulia's file on Reece's Rainbow
5/25/14 Letter of Intent (LOI) sent for 'Yulia' on Reece'e Rainbow
5/26/14 Names 'Yulia' Frances "Frannie" Joy after Mr. Prince's Grandmother who shares her birthdate
6/19/14 Preapproval (PA) from China for Frannie Joy
6/5/14 Fundraising Garage Sale that raised $1600
6/20/14 Officially started our Homestudy (though they already had all of our paperwork since May)
9/5/14 Fundraising Garage Sale that raised $800
9/23/14 Completed all Homestudy requirements
10/23/14 Preapproval (PA) from China for Finton Scott, named after his great uncle who had albinsim
1/16/15 Dossier to China (DTC)
11/10/14 USCIS i800a Receipt date
12/18/14 i800a Approval
2/10/15 Logged In Date (LID)
3/27/15 Letter Seeking Confirmation (LSC/LOA)
4/7/15 i800 Lockbox received
4/21/15 i800 Approval
4/27/15 GUZ#
4/27/15 DS260 Filed
4/28/15 PDF of NVC Letter
5/4/15 Article 5 Drop Off
5/18/15 Article 5 Pick Up

Myra's Story

Myra born September 24, 2009 with severe global brain damage after an emergency c-section brought on by a sudden heart rate drop during labor.

Nissen Fundoplication and G-tube Surgery - October 14, 2009 (diagnosed with severe reflux and no suck-swallow reflex, but was nursing full-time before she left the hospital!)

NICU 4 weeks - Home on October 23, 2009

Diagnosed with Microcephaly "small head" - November 2009

Umbilical Hernia repair, MRI - December 17, 2009

MRI results
Prematurely Diagnosed with Cerebral Palsy - January 21, 2010 (low tone in truck, high tone in arms and legs)

Diagnosed with Cortical Visual Impairment - March 8, 2010
(vision declining February 2010)

Diagnosed with Infantile Spasms - May 5, 2010
(spasms started March 21, 2010)

Started ACTH for Infantile Spasms - May 12, 2010
(hypsarrhythmia corrected by June 7, 2010, spasms not gone)

Rolls over from tummy to back at 10 months - July 2010

ACTH treatment completed - September 2010
(physical spasms now gone!)

Laughs for the first time at 14 months - November 2010

Tube surgery for recurrent ear infections - December 1, 2010

Rolls from back to tummy - December 15, 2010

Diagnosed with Moderate hearing loss of high frequencies in both ears - January 18, 2011

Hearing Aids - January 2011

Ankle-Foot Orthodics (AFOs) - September 2011

Stander - October 2011

Seizures returned and added Topomax and Diastat to current Keppra anti-seizure medications - November 2011

Wheelchair - December 2011

Playing with toys on her own - January 2012

Vision improving - February 2012

Signing 'food' regularly and signed 'dad' on Father's Day - June 2012

Hand splints - June 2012

Euro-PEDS Intense Physical Therapy Program - 2 weeks in July 2012

Rolling purposefully - July 2012

First steps with gait trainer - July 2012

Added Lamictal to anti-seizure meds - September 2012

Another ear tube surgery for recurrent ear infections - December 2012

Eating 4oz at a sitting and preparing to wean some tube feedings - March 2013

Euro-PEDS Intense Physical Therapy Program - 2 weeks in April 2013

2.5 hour seizure that sets back all therapies and eating - April 2013

Euro-PEDS Intense Physical Therapy Program - 2 weeks in July 2013

Upsee harness - June 2014